[What is Ehlers-Danlos Syndrome?]
I thought I’d bring the start of Ehlers danlos syndrome (EDS) awareness in by finally watching ‘Issues with my tissues’, a documentary following Lara Bloom’s journey to be the first person with EDS to walk the london marathon in memory of a friend lost to vascular EDS.
I don’t know why I put off watching it for so long but since I was reading other peoples posts about their EDS and them recommending it, I thought it was about time I should watch it.
Throughout the documentary there were snippets of interviews from medical professionals talking about what is Ehlers-Danlos Syndrome, complications and risks of Lara attempting to walk the London Marathon as well an introduction of what causes EDS, the different types and the effects/complications it has on the body. Its shows her struggles, strength, and complications she entails while preparing and training for the marathon and explain the whole reason she’s putting herself through this. I looked at the comments after watching it to people being so degrading and saying she was ridiculous for putting doing something so dangerous and totalling disregarding the huge triumph that she’d done, in my opinion it was fu*king amazing, I definitely wouldn’t be able to do it. I’ve got to admit I teared up a few times and usually I can keep them back, maybe because I know exactly how she and everyone feels?
It introduced the fact that no two people are the same, in some people it can only cause problems within the gastrointestinal area, somebody else’s main issue will cause extreme pain while others have dislocations. I think we can all confer that pain is probably universal in most EDS cases.
This documentary was made predominantly made showing lara’s journey fundraising and creating awareness, she did a bloody good job on completing the mammoth task of completing a marathon and i applaud her for it. I’d love to see more documentaries about people live with EDS and going more in depths in issues that others have. Even though I’ve lived with the wrath of this illness all my life I’m always open to learning more about it as you can never understand to much.
As time goes on Ehlers-Danlos Syndrome alters my life in multiple different ways, spreading awareness and accepting you have an illness is not giving in and it’s not letting an illness ruin your life.
Make sure you leave your opinions on the documentary and if you’ve watched it. If you’ve found any good videos on EDS please link them down in the comments as I’d love to watch them ?